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Local Residents Help with the Refugee Crisis & Resettlement Needs

April 18, 2019 by Anna Young

PHOTO COURTESY OF MARY REFLING

Four years ago, a photo of a Syrian boy’s lifeless body washed up along the Turkish shore went viral and enlightened so many to the plight refugees succumb just to have freedom, peace and safety.

The three-year-old boy, who was one of 12 Syrians who drowned in the Mediterranean Sea attempting to reach the Greek Island of Kos, encapsulated the determination and desperation refugees experience trying to escape the horror and danger they were born into.

That photo served as a catalyst for several residents and organizations throughout Westchester County to work together to support refugees overseas and aid in integrating and assimilating them as they sought refuge in the United States.

Armonk resident Jackie Tarascio said she was shocked by the image and felt an urgency to help refugees in anyway.

“When I saw it, I just felt like I had to do something. It was an awful image of these refugees seeking freedom,” Tarascio said. “It’s easy to go to dinner with your friends and have a day-to-day life, and then you become aware of what’s going on and you feel guilty for spending $5 on coffee, having a home, wearing a jacket or travelling through a border. These people can’t even cross a border to get to safety.”

Wanting to help those in need, Tarascio searched through social media for groups devoted to connecting refugees and volunteers, eventually joining several private groups on Facebook that serve both local families and those overseas. It’s a networking team that has been built up over the years and you learn the people you can trust, she said.

Tarascio noted many instances where her volunteerism assisted someone resettle locally, find a job, or acquire a doctor to perform an essential surgery overseas, adding that each individual and family is grateful to receive support. But while Tarascio is fortunate to help so many, she said it’s a highly emotional circumstance where some cases simply can’t be solved.

“Sometimes you need to come to terms with a family being unable to get out of their situation,” Tarascio said. “It’s a burden you expect, and it’s a weight on your shoulders and an awareness of what is happening. It took me seeing a news report to want to know more but if I can help get someone a stroller it’s heartwarming.”

Chappaqua resident Mary Refling, who started the Westchester Refugee Task Force in 2015, said she became aware of the violence in Syria after seeing the graphic photo in church one day. After learning there wasn’t a resettlement agency in Westchester, she said it was time to step up to the plate and help those seeking asylum.

“Most of the people in our group feel this real strong connection to this sense of civic responsibility that we are here and the privileges we enjoy as American citizens are due in part to our grandparents and our parents,” Refling said, noting how difficult it is for people to leave their life, and sometimes families behind, to emigrate to the United States with almost nothing. “We just feel like someone did this for us so it’s our turn to make it possible for the new generation of immigrants.”

Kathie O’Callaghan, president and founder of Hearts & Homes For Refugees (HHFR), felt similar discouragement after she launched her non-profit grassroots humanitarian group in 2015. O’Callaghan collaborated with several civic groups and faith-based coalitions to create the Westchester Refugee Initiative to broaden the scope of work they could do to resettle refugees. In the last two years, she said her organization has resettled 12 cases, or 100 individuals.

Jackie Tarascio

While O’Callaghan and Refling are proud of the work they are doing, both noted that the Trump Administration has made every effort to prevent refugees from seeking asylum in the United States. According to statistics from the U.S. Department of State, the number of new refugees in New York decreased from a high of 5,026 in 2016 to 1,281 in 2018.

With the number of refugees decreasing, O’Callaghan said her organization is focused on supporting recently resettled immigrants, citing that many of them have particular needs and run into obstacles as they integrate into the community. “The US has always been the country people look up to, and we’re not going to model the current behavior that this country has shown,” O’Callaghan said. “We’re not going to save the world by resettling refugees but it’s important that we make sure that we do our part. We’re not going to disappear.”

 

Filed Under: Armonk Cover Stories Tagged With: Hearts and Homes for Refugees, help, refugee, Refugee Task Force, support, Westchester County Refugee Task Forces

“If It’s Not One Thing…”

April 18, 2019 by Beth Besen

 

(L-R): Don Rosenstein, MD and Justin Yopp, PhD Authors of The Group
PHOTO COURTESY of UNC Lineberger Comprehensive Cancer Center

How Programming at Gilda’s Club Helps Those Affected By Cancer

Gilda Radner, and her much-beloved Saturday Night Live comedic characters such as Roseanne Roseannadanna, kept audiences in stitches from the mid-1970s through the actress’s untimely death from ovarian cancer in 1989. Laughter is a gift, and Radner gave most generously. It is in that spirit of giving, and to honor her personal wish that information about her illness be shared to help others fighting cancer, that her husband, Gene Wilder, helped establish Gilda’s Club.

Gilda’s Club is a national network of 22 “clubhouses” dedicated to helping all people living with cancer– patients, their families and friends–free of any financial charges, ongoing obligations or commitments. Local affiliate, Gilda’s Club Westchester*, has welcomed and supported individuals and families in its warmly inviting White Plains clubhouse since opening its signature red doors in 2001.

Help for Bereaving Parents

While Gilda’s Club has a full calendar of regular and ongoing classes, support groups and events, there are often special events as well. And, it’s worth noting, many of these are open to the public without any need of Club Membership. In fact, this coming Monday, April 22nd, from 6 – 7:30 p.m., Gilda’s Club Westchester in partnership with the Bereavement Center of Westchester is hosting a Special Bereavement Parenting Workshop. The workshop will be led by clinical psychologist Dr. Justin Yopp, PhD and psychiatrist Dr. Donald Rosenstein, MD, authors of The Group: Seven Widowed Fathers Reimagine Life and co-founders of The Widowed Parent Project.

The Widowed Parent Project began in 2010 with a support group for fathers who had lost their spouses to cancer. From that small original group of widowed men to research that involved more than 400 fathers, to its current commitment to supporting widowed mothers and fathers, the Project is part of the Comprehensive Cancer Support Program at the North Carolina Cancer Hospital and Lineberger Comprehensive Cancer Center of the University of North Carolina at Chapel Hill.

The highly anticipated evening event is for “parents who have lost a partner to cancer and struggle with experiencing loss as they continue their role as a sole parent.” Yopp and Rosenstein will share their experiences in supporting both widowed fathers and mothers, and provide additional methods for coping with loss of any kind. Children of attendees are invited to come along, and to participate in a concurrent social program facilitated by a professional from Gilda’s Club Westchester’s Children Teens and Families group. Copies of Yopp and Rosenstein’s book will be available for purchase (with all proceeds going to the Widowed Parent Project) and light refreshments will be served.

New Off-Site Cancer Support Group in Northern Westchester

As busy and wonderful as the White Plains clubhouse and its many free programs are and continue to be, Gilda’s Club Westchester’s Director of Clinical Partnerships, Christine Speck, points out that the club’s proximity to people in need can be a deciding factor in determining membership and usage. “Time management is a big part of cancer treatment”, says Speck. Patients have various doctor visits, treatment visits, and also recovery times when they’re just too tired to go anywhere. There’s a lot to consider. Therefore, Speck and her colleague, Programming Manager Debbie Vincent, LMSW, are very excited to announce a new off-site initiative, the Living with Cancer Support Group, especially intended for people in northern Westchester.

Held at the newly renovated Bedford Playhouse, the Group will meet every second and fourth Wednesday from 10–11:30 a.m. beginning in April. It’s worth noting that the Bedford Playhouse is more than a comfortable, convenient locale; it was here that a preview of the thoughtful and moving Gilda Radner documentary, Love, Gilda was screened to great acclaim. The Group “will encourage discussion of personal experiences as well as provide ongoing exploration of emotional and social concerns, while dispensing wisdom and practical advice.” It is open to anyone in active treatment, including those who are not Gilda’s Club Members. Those interested need only sign up ahead of time.

*For further information, please visit Gilda’s Club Westchester website: www.gildasclubwestchester.org

Filed Under: Cover Stories Tagged With: book, cancer, Cancer Support, fighting cancer, Gilda, Gilda Radner, Gilda's Club, Laughter, love, support

Spinning for the Win – Against Rare Cancers

March 8, 2019 by Beth Besen

Team Sit & Spin 2018

Chances are, you know someone affected by cancer. Maybe a parent, a sibling, child, cousin, best friend. Maybe you, yourself. If so, you deeply understand that it’s a battle against a cunning and deadly foe. That said, through a combination of early detection and new and better treatment options, these days it’s a battle people are winning.

But new and better treatment options don’t just happen; they’re based on years of research and development, followed by clinical trials with carefully selected patients. And, yes, all this science comes at a price. While government spending and grants provide some of the necessary funding*, a huge piece of the funding pie comes from individual donations and fundraising. What’s more, government dollars aren’t allocated equally and rare cancers**, in particular, rely heavily on private fund-raising and donations.

Enter Pleasantville resident Justine Fontinell. Together with her husband Tom Becker and their ten-year-old son Hank, she moved to Pleasantville nearly nine years ago and, though a born-and-bred Manhattan girl, Justine shares that she could not be happier.

Among the reasons? “Pleasantville is an amazingly generous town filled with people who go out of their way to help each other.”

Justine first became aware of Cycle for Survival about six years ago. Both her parents are rare cancer survivors, and Cycle for Survival’s founders’ story, mission, and collaboration with top-tier cancer research center Memorial Sloane Kettering (MSK) – along with their commitment to use every dollar for research and allocate every one of those dollars within six months of every event – spoke to Justine’s desire to support others in their respective fights. Coincidentally, Justine discovered that co-founder Jennifer Goodman Linn suffered from the same rare sarcoma as her father. Feeling compelled to join and contribute to this worthy cause, Justine quickly put together her first Sit and Spin team and, in 2013, raised over $8k. Since that first year, Sit and Spin has grown in membership and, importantly, grown exponentially in funds raised. To date, they have raised over $260k, and this year’s goal of at least $40k would bring the grand total to over $300k! As a former non-profit Director of Development, Justine knows that asking for money isn’t something that comes naturally to most people. She further acknowledges that a ‘personal ask’ feels and is different from a ‘corporate ask.’ That said, she points out that the common principle is a simple one: “people won’t give if you don’t ask.” And, in keeping with this philosophy, she asks every team member to remember that they are “giving people an opportunity to invest in lifesaving research, a donation that will have a direct impact on cancer treatments.” Sit and Spin’s success has been recognized for the last three years with a 10K grant from the Crimson Lion Lavine Family Foundation, as a bonus for achievement in recruiting new donors and increased gifts.

However cliché it may sound, giving to others truly does empower the giver. Justine describes every four-hour fundraising spin relay event as nothing short of extraordinary. A simple look at her accompanying photos leaves no doubt that there is fun and laughter, but, as she also shared, then too there are tears. It’s an emotional as well as physical experience; every gym is tightly packed with bikes and riders, riders write and proudly “wear” on their bodies the names of those they’re honoring, speakers share their personal stories between each leg of the ride, and the collective energy of working together for a cause is an overwhelmingly positive experience.

However cliché it may sound, giving to others truly does empower the giver. Justine describes every four-hour fundraising spin relay event as nothing short of extraordinary. “It’s an overwhelmingly positive experience.”

Justine counts old friends (from as far back as High School) as well as many Pleasantville mom friends as regular participants of her annual teams. Karen McCarthy has lived in Pleasantville and known Justine since their two boys were in preschool together. This will be her fourth year with Cycle for Survival. “I ran into Justine and another team member on my Metro North train ride from NYC to P’ville; they were coming back from a pre-event and I had just seen my doctor at MSK for my six month visit. I always donated to the team, but thought my way of giving back would be to join them. In 2015, I had part of my thyroid removed at MSK due to Thyroid Cancer. Thyroid Cancer is a rare cancer without a lot of funding, but, when discovered early, has a very high cure rate. I now get checked once a year to make sure there is no recurrence.”

Adds P’ville teammate and survivor Vanessa Catalano, “I joined Justine’s team three years ago as a way to celebrate the end of my fight with Stage III Triple Negative Breast Cancer. Throughout my operations and treatments I continued to go to my step and spin classes at the gym.  It was my part in keeping myself as healthy and strong as possible. When I heard about Cycle for Survival I knew it would be a great match for me.” Thrilled to have celebrated two years in remission this past December, Vanessa, noting that she and her family received tremendous love and support throughout her battle, adds, “part of my survival is remembering that and paying it forward through this event.” To date, Vanessa’s brother is the only male to have joined team Sit and Spin. However, Justine welcomes all who are willing to work hard to join her!

For further Cycle for Survival information, please visit: cycleforsurvival.org

*Current Fiscal Year (FY 2019) Budget: The FY 2019 Department of Defense and Labor, Health and Human Services, and Education Appropriations Act included $5.74 billion for NCI, a $79 million increase over FY 2018. Source NIH/NCI website
**Described by Cycle for Survival as: brain, pancreatic, ovarian, thyroid, and stomach cancers; leukemia and lymphoma; all pediatric cancers; and many others.

Filed Under: Pleasantville Cover Stories Tagged With: cancer, Cycle for Survival, early detection, Justine Fontinell, Pleasantville, Rally, Rare Cancers, spin, support, Winning

Think Fit for Kids

March 8, 2019 by The Inside Press

PHOTO BY JODI BUREN, TRIPP STREET STUDIO

The 9th annual Think Fit For Kids event, which supports pediatric brain cancer research, took place once again at Club Fit in Briarcliff on March 3rd. As always, the event brought the community together for a fun-filled day of fitness, while raising funds to support novel pediatric brain cancer research. Since the 2018 event, A Kid’s Brain Tumor Cure Foundation has merged with the Pediatric Brain Tumor Foundation, the largest pediatric brain tumor foundation in the country, in order to serve more families and find more promising treatments for children battling brain tumors.  This merger would not have been possible without the success of Think Fit For Kids, which has raised close to $2 million over the last nine years. Think Fit For Kids funds are currently funding two clinical trials at Memorial Sloan Kettering Cancer Center, and an on-going research project at the Massachusetts General Hospital, as well as the first ever privately funded pediatric brain cancer research project at the National Cancer Institute. The non-profit is excited for this opportunity as it finally gives pediatric brain tumor research the recognition it deserves from the government. “None of this would be possible without the community support of the annual Think Fit For Kids event. The community’s generosity has given hope to kids battling brain tumors who have run out of treatment options,” noted Kim Gilman, a Chappaqua resident and co-founder of the Think Fit For Kids event. To find out additional information or to donate, please visit thinkfitforkids.org.

Filed Under: Armonk Just Between Us, Happenings Tagged With: club fit, Just Cure It, Kim Gilman, pediatric brain cancer, Pediatric Brain Tumour Foundation, support, think fit for kids

Community Comes Together to Support Danny McManus, a Wampus Student & Leukemia Patient

April 21, 2018 by Julie Eskay Eagle

Usually ten-year old Danny McManus, a fifth-grader at Wampus Elementary School, is outside with a ball and lacrosse stick.  Standing 5’4” tall, he towers over most of his friends, and is a tireless force of nature.   This past October, while Danny was competing in the Tri-State 91 Lacrosse tournament, he wasn’t keeping up the way he normally would.  Danny’s parents sensed something was wrong, took him to the pediatrician, and within 24 hours was admitted into the hospital and diagnosed with leukemia–a form of blood cancer.  When I see people in town now, Deidre McManus, Danny’s mother says, “I realize we have changed people by sharing what we are going through.” The subsequent outpouring of support from family and friends, neighbors, doctors, teachers and clergy tells a heartwarming story about the generosity of Armonk’s community.

When Mrs. McManus and her husband Francis were told that they needed to bring Danny to the hospital, they had to find someone to take care of their older son, Colin, who is in 7th grade. Their neighbors Drs. Erik Cohen and Maude Lemercier were already friends, but have become like extended family, giving Colin an extra set of adults to rely on, and helping the McManuses to interpret the constant stream of medical information.

That first night, while Danny was being evaluated in the hospital, Deirdre thought of her lifelong friend, Karen Wolownik, a Nurse Practitioner and Nurse Leader in the Pediatric Blood & Marrow Stem Cell Transplantation Unit of Maria Fareri Children’s Hospital at Westchester Medical Center.  Within a few hours, Karen received an alert from the hospital about Danny. She called Deirdre right away–Karen’s expertise was precisely what they needed. Karen was confident that Danny was in the right place to deal with this horrible disease.

It’s taught us a lot about cancer–how it can affect anyone, even kids… and that even with cancer Danny is still just Danny—my friend.  He has shown us that having a strong growth mind-set helps get you through the things in life. —Shane Gordon, Danny’s friend

Danny’s AML Treatment

The first line of treatment for Danny’s acute myeloid leukemia which is commonly called AML is potent chemotherapy, often followed by a stem cell transplant. The Children and Adolescent Cancer and Blood Disease Center at Maria Fareri Children’s Hospital has become a center of excellence for such therapies. The center was established in 2011 when Westchester Medical Center hired Dr. Mitchell Cairo from Columbia University to lead it. Dr. Cairo is a world renowned specialist in stem cell biology, molecular oncology and experimental immunology and a long-time Armonk resident.

In addition to the expertise provided by Dr. Cairo and his team, the McManuses have been overwhelmed by the competence and compassion of the staff at Maria Fareri Children’s Hospital. “They’ve worked with Danny every step of the way to always make sure he understood what to expect during every procedure.” For example, before Danny had a port connected to deliver chemotherapy, the Child Life Specialist explained the procedure by letting Danny feel the port and see how it would be used with the help of a doll.  Then, during the chemo, Danny needed an NG tube (a nasogastric tube) to deliver nutrition directly to his stomach. The physician working with Dr. Cairo, Jordan Watson, MD, asked one of the residents to demonstrate for Danny what it would be like and, right in front of Danny, inserted a tube down Jordan’s nose and throat! She said, “I’ve always wanted to know what it felt like!”

Community “Shavees” Support Danny

As if that wasn’t enough, last month Dr. Watson asked the McManuses if Danny would be part of her team, raising funds to support the St. Baldrick’s Foundation, which is dedicated to funding research for childhood cancers. Danny’s family and friends created The Mighty McManus Team, Dr. Watson and her fiancée shaved their heads alongside nine of Danny’s friends, and together they raised nearly $30,000.  Danny’s friends, Shane Gordon and Michael Bellantoni, are two of the “shavees.”  Gordon says, “The reason we all shaved our heads was because he really likes his hair, so we thought it would be good if we let ours all grow back together.”  In addition to funding research, the McManus’s relatives created a GoFundMe campaign to lend a hand while Deirdre and Francis take time from work and manage the costs of Danny’s care.

Danny’s friends, before and after shaving their heads at the St. Baldrick’s Fundraising Event

A Turn for the Better

The next step in Danny’s treatment was a stem cell transplant. Statistically, 1 in 4 siblings have markers indicating they are a good match and won’t be rejected by the recipient. In Danny’s case, they were thrilled to discover that his brother, Colin, is a 100% donor match for Danny, making a stem cell transplant an ideal option. On January 4th Colin underwent a 3-hour operation–drawing bone marrow from both hips to obtain stem cells to populate Danny’s bone marrow. Since then, Danny has been improving every day, and although he has no immune system of his own yet, he was able to come home from the hospital after 133 days when they celebrated Danny’s 11th birthday on March 13th.

Danny’s friends paid a visit in honor of his birthday.

The McManuses are touched by the efforts made by every church and synagogue in the community. Melissa Gordon, who attends St. Patrick’s with the McManuses, says that since Danny’s diagnosis, a remarkable number of children and adults have filled the church on First Fridays, when the Church holds special services for adoration and prayer. At school, Danny’s teacher, Mrs. Marchesini, has kept Danny as involved as possible, and in the meantime made t-shirts, videos with messages from his classmates, and a video of the whole class singing Happy Birthday to Danny.

Shane Gordon and Danny look forward to getting on their bikes again and exploring the outdoors.  When I asked Shane how Danny’s illness has affected him and his friends he said, “It’s taught us a lot about cancer–how it can affect anyone, even kids… and that even with cancer Danny is still just Danny–my friend. He has shown us that having a strong growth mind-set helps get you through the things in life”.

(L-R): Deirdre McManus, Dr. Jordan Watson and Karen Wolownik
For those who would like to help, both the Maria Fareri Children’s Hospital and The St. Baldrick’s Foundation accept donations.  In addition, the McManuses recommend registering with BeTheMatch.org to help someone in need of stem cells.

When a person develops leukemia, the body makes more white cells than it needs, crowding out the normal cells and affecting the way major organs work. Eventually, there aren’t enough red blood cells to supply oxygen, enough platelets to clot the blood, or enough normal white blood cells to fight infection.

Filed Under: Armonk Cover Stories Tagged With: AML Treatment, Byram Hills School District, Danny McManus, leukemia, Maria Fareri Children’s Hospital, Pediatric Cancer, pediatric leukemia, support, Wampus School

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