The Inside Press

Magazines serving the communities of Northern Westchester

Jennifer Drubin Clark

A BODY ALTERED By Prophylactic Surgeries: A MIND ALTERED By Consciousness

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And JUST when I thought I had finally been called every name possible… It was December 2021 when I was asked to speak on a panel about Breast Reconstruction by The American Society of Plastic Surgeons. A few days prior to curtain call, my doctor’s office sent an email to the moderator with my background which introduced me as a “Previvor.” I had never heard the word, nor been accused of being one, and I’m nearing 39. BUT I assumed I knew what it meant, thought I liked it, and I flexed my muscles. So pumped that I immediately called my mom and was like “Guess what?! I have a name!!!!!!” I’m a Previvor, I’m not gon’ give up (sing it with me).

As I came down from the heroic high, I thought it would probably be a good idea to look up the true definition of the term. So, I drove to the North Castle Library, hunted down the World Book Encyclopedia Series, and got to work (fallacious). 16+ pages of Google search results, and hundreds of clicks later, I come to you with this:

Previously described as an “unaffected carrier,” the term “Previvor” refers to someone who has an elevated chance of being diagnosed with cancer due to a risk running through their family and/or a genetic mutation. FORCE, which stands for “Facing Our Risk of Cancer Empowered,” founded by Sue Friedman in 1999, acts under the principle that nobody should face hereditary cancer alone. This organization is credited for coining the term which Time Magazine declared a buzzword in 2007.

So, is it even a REAL word? Well, no, not according to Merriam Webster; “Previvor” is not a recognized word. From what I found, the exact definition lacks consistency from one publication to the next. For example, some medical websites reserve the term to solely describe people who have undergone a preventative surgery, while other equally credible websites reserve the term for anyone who is predisposed to an elevated risk of cancer, regardless of whether or not they had a preventative surgery. And while some studies show that many people who would be considered previvors don’t want to be “jinxed” by such a name, other studies presented individuals who only found a purpose to continue living after they identified as one.

It’s really simple though. You see, there is a difference between someone who has been diagnosed with cancer and someone who’s been told they have a high likelihood of hearing that same news. Read that again. While they will end up using the same doctors, waiting rooms, and gauze, their experiences and struggles are vastly different. We all know that someone diagnosed with cancer will be referred to as a “Survivor,” but what should we call those other people that also need to be medically treated and mentally cradled??!! EXACTLY…

Three generations: my daughter, mom and me.

An increase in genetic testing over the decades has left the human race with a rather large community of people who remain undiagnosed, yet aware they’re predisposed to an elevated risk of cancer. That’s a heavy suitcase to walk around with and it left many people struggling and looking for somewhere to turn. These “people” needed a name. A differentiator. An umbrella to fall under, regardless of who, what, where, when or why we needed a name for people who went in for genetic testing and got bad news. And now you know what those people are called; “Previvors.”

And this is where the rubber meets the road…

In July 2000, at the age of 46, my mom was diagnosed with stage two breast cancer. She underwent a mastectomy and required chemotherapy. I was 16 years old and thought my mom was going to die.

This is a piece of art I made for my mom when I was 16-years old and her hair started to fall out. She still keeps it close by in her closet as a reminder of her bravery. I love seeing it there.

Fast-forward to February 2016–halfway thru my first pregnancy, my mom goes in for genetic testing and boom, positive: clinical mutation identified PALB2 (this is a BRCA carrier/ related mutation). Four months after I give birth to my son, boom, I tested positive: clinical mutation identified PALB2. The chances of me being diagnosed with breast cancer pre-menopause was extremely high, like stupid high. I gave birth to my daughter in May 2018 and underwent a bilateral prophylactic mastectomy in November of that same year. Three additional and extensive reconstructive surgeries followed in February 2019, September 2019, and March 2021.

My journey was supposed to end with a final reconstruction in February of 2019. The two surgeries that followed were unanticipated, avoidable, and quite honestly, tragic. I suffered through chronic pain, capsular contracture, herniated discs, guilt, and far too much freaking time away from my children (exactly what I was hoping to avoid by having the preventative surgery in the first place). The “Why Me’s?” only came to a stop when I started to embrace my new identity and find purpose in doing so as a patient advocate. They stopped when I found out that I wasn’t alone. And yes, it also felt nice to know that people like me, Previvor’s, have a community.

Being called a “Previvor” made me feel tough. I never had cancer but I did go through a lot. A lot of different things than a Survivor would, but still things that forever changed me and my family. When I went in for genetic testing, I never could have imagined how much my identity would change; not just my body.

This photo was taken at the end of the last summer, August 2021. It marked the end of a long, long journey. I was finally living life and no longer suffering from chronic pain. This is my happy place. When I see this picture of myself, I feel proud of how far I’ve come.
Here is a selfie I took before I spoke on a Breast Reconstruction panel by the American Society of Plastic Surgeons.
This is a picture of my friend Sabrina (another North Castle mom) who came over to braid my hair post mastectomy when I couldn’t shower or move my arms. Moms helping moms at its finest here.

Let me leave you with this:

When you learn that you have an elevated risk of cancer due to your heritage, your life path will change; whether you choose to have a preventative surgery or pretend you never heard the words, whether you like it or not, your life path will change.  

Go in for genetic testing with a plan to address whatever outcomes may arise. You would be foolish to think that hearing you have a genetic mutation really won’t impact your life that much. Have a plan. Even if it’s only a mental one.

THANK YOU. And I mean that. The opportunity to share my story is without a doubt, the best medicine. 

And finally, if you or anyone you know will be facing breast reconstruction, whether it be preventative, post-diagnosis or even cosmetic, find me. Let’s talk.

…it’s a Beyonce song…

Old School Players to New School Tools – How the Well Executed Pivot Made all the Difference

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Dance Students from the Division of Fine and Performing Arts at Manhattanville College

To write that Covid was terrible for all educational programming, colleges and universities would be an understatement and perhaps not always true, so I won’t write that. Instead, I will write this: Covid forced educational programming, colleges and universities to decide whether or not they were willing and able to pivot; constantly. Those who were fortunate and creative enough to be willing and able are still open for enrollment. In fact, many admission offices are slammed with more student applicants than ever before. You can guess why….

Here I will share with you what I learned from individuals ‘in the know’ at two well respected local powerhouses of education in the area: Manhattanville College and Music Conservatory of Westchester.

“Streaming” was a common theme throughout our conversations; ranging from online performances and lessons to seminars and jam sessions, teachers and peers alike watched their audiences grow larger and larger as the viewers increased. Allowing their communities to access this functionality throughout the entire pandemic, in addition to equipping them with the proper toolbelt to do so, is truly a tribute to their dedication to education and unwavering ability to pivot. And pivot well. Enrollment and application numbers are healthier than ever!

Manhattanville College: Nurturing a Hub of ‘Intellectual Culture”

Clocking in at 180 years old (est. 1841), Manhattanville College is a private, liberal arts college offering undergraduate and graduate degrees in Purchase, New York. Music, Studio Arts, Dance, Musical Theater, and Theater are just a few of the programs offered here. Olivier Fluchaire, D.M.A. Division Chair & Associate Professor of Music at the school took some time to chat with me about what life at Manhattanville College has been like over the last 18 plus months; his life, his students’ lives, and his faculty’s well-being as well.

Tailored education

 “Our 70-member expert faculty in the Fine and Performing Arts Division stood as one, caring and engaging our students through this excruciating year,” said Dr. Fluchaire, “never allowing instruction to be altered and continuing our endeavor to deliver a tailored, individual education, while sharing our devotion to intellectual culture and the fine and performing arts.”

Enrollment for the Fine and Performing Arts at Manhattanville College started a little later than normal this year with the majority of applications received during the spring semester instead of the fall because no one knew what school was going to be like this fall. However, once that unknown fear initially subsided, Manhattanville witnessed a 25% increase in deposits for the fall of 2021, compared to last year’s enrollment rate.

While some staff was familiar with the new demands of computer integration into the classroom, plenty of professors had to learn some new skills. After all, just because you are a professional singer doesn’t mean that you know how to turn a zoom call into a “gallery” view. Art galleries went from on-foot to in-pixel and video editing became just as important as posting to social media accounts across multiple platforms. This massive new online presence is certainly to blame for the uptick in enrollment. Staff adapted, upgraded their skills, and also grew in numbers as additional and new talent was necessary.  

Auditions at Manhattanville are very stringent and require three different videos from different works or three different paintings, dances, etc. Because everything was done online, with all live auditions canceled, applicants had to upload their video submissions, there was an added layer of difficulty for some of the students; or so, they thought. BUT more applicants and email inquiries than ever gave proof through the pandemic that their school was still there. 

Dr. Fluchaire credits online word of mouth, students having time at home, behind the scenes tapings, and a devoted community as some of the gold tokens to take away. Programs here will keep up this aspect of streaming as much as possible regardless of where the teaching takes place moving forward. It was THAT impactful. Nice pivot.

Music Conservatory of Westchester: Intensive Training and Stand Out Students

Clocking in at 92 years old (est. 1929), the Music Conservatory of Westchester provides quality music education for students of all ages, abilities and backgrounds, with one-on-one instruction, performing ensembles, theory, composition, early childhood classes, lifelong learning for adults, and free community performances. Adriana Rivera, Manager of Communications & Marketing at MCW, spent time highlighting excellence within their community and a few remarkable students who are about to set forth on some incredible new beginnings.

MCW offers an intensive pre-college training program for talented high school instrumentalists and singers called MCW Prep. Similar to the other programming, these students too are selected by audition. Students enrolled in the program are offered a unique opportunity to study with master performers of the New York Philharmonic, Metropolitan Opera, and Chamber Music Society of Lincoln Center. There is no other program in the New York State region that offers the chance for high school students to study with master teachers of this caliber.

Korliss Uecher, a soprano with the Metropolitan Opera and teacher at MCW Prep, didn’t seem to miss a beat with students who were graduating and ready to move in to the next chapter of their musical career. With the new inclusion of virtual lessons/ portals on their website and technology assistance as well, all aspects of the organization are churning out award-winning students whose academic achievements are also attributed to their study of music.

Two stand-out students that took this opportunity and experience, and who are about to set forth on new beginnings, are Palani DeMario and Ava Gallo-Grosskreuz. Both freshly graduated from high school during the most difficult of times and are ready to spread their talent and love for the fine and performing arts.

Palani is 18-years-old graduating from New Rochelle High School; a musical theater/pop singer who will be attending American Musical & Dramatic Academy in Fall 2021, Palani lives with his single mother who immigrated from Haiti. His mother is disabled, and Palani is the caretaker for her and two younger siblings. He sings in his school’s Select Choir and plays guitar.

Ava is also 18-years-old graduating from Hopewell Junction High School; a jazz/pop/contemporary singer, Ava will be attending Belmont University in Nashville to study in the Music Industry Program in Fall 2021.

So we conclude: Artists, Performers, Creators-alike burst with the type of passion that could never be silenced; not even by a pandemic. Driven by devotion, perseverance, art, and music, Manhattanville College and the Music Conservatory of Westchester not only survived but thrived. In the newly famous words of Eric Ries,“a pivot is a change in strategy without a change in vision.” Applause to a Proper Pivot.

Hickory is wood, Tweed is wool

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Catching up with Sports Enthusiast Skip Beitzel, the Iconic owner of Hickory & Tweed

Photo by Carolyn Simpson

Skip shared with me his love for Armonk and feels blessed to be a staple in our community.

The architectural touches, colors, and Stowe-like feel of their building is true and will remain everlasting as his family-run business will one day be passed down to future generations.  

Skiing is the new biking. 

Do you remember when bicycles were spinning off the shelves like hand sanitizer back in April/ May of last year? When inventory was low, factories were shutting down, trying to find a spare part was impossible, and asking someone if they had a bike rack for sale was a laughable offense? Well, reservations and bookings showed that the 2020-2021 ski season was going to demand the same. There was no break for employees or suppliers between the seasons as the bikes were still out while the snow started to fall. Skip was heavily focused on “getting through the winter.” Skiing was top of mind. 

In charge of buying and merchandising, Geri Moore, Debbie Coldwell, and Skip’s wife Michaela hustle to refresh and restock their downstairs inventory, while listening to the sound of boots banging on the floor above as skiers and boarders rush the store for fittings. 

Hickory and Tweed has a narrow and deep product philosophy, “carry what we love, know why we love it, and our customers will trust us.” The store has been carrying the Patagonia brand for 35 years, and Bogner is going on 60 years. “Hold tight, Jennifer we’re just jamming here,” he insists in a genuine soft-spoken mixture of tones, Skip’s phones were ringing off the hook. And they were not going to stop anytime soon…

It wouldn’t be long before it was bike season again. “We have a lot of dedicated bikers here,” Skip explains to me. As an avid user of his electric bike, Skip sometimes uses it to get back and forth to work. With pedal-assist, he can crush the massive hills and arrive at the shop sweat-free. These too were and still are in high demand. Waiting for suppliers to get restocked after last year, I learned it has been a slow build of inventory but it will in fact be ready and available for you and your family.

Skip is active.

When he’s not praying for snow in Armonk, he is praying for waves in Ocean City, NJ. Skip has been a surfer for over half of a century. He CAN snowboard, but prefers his two legs to work independently (via skis). He also skateboards. In fact, back in 1977 Skip built the first skateboard park in the northeast, it was called Wonderwave. Any 1970s skaters out there?? You knew this place. 

Wait, I’m not done… in his free time, Skip goes on an annual, consecutive trip to Alta with the same group of friends every year since 1968; that is 51 years of awesome with, believe it or not, the employees he met when he first started working at Hickory and Tweed (lift jaw now).  

Today, Skip celebrates his 36th successful year of ownership.

Feeling inspired? 

In Skip, We Trust.

Home is Where the HeART is: Time Out and IN with Evan Lorberbaum

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Artist at Home: Evan Lorberbaum @elovisualart on Instagram  PHOTO By Donna Mueller

Please, let us take this time to dive into the heart of your home; where the art is (not?).

Did you know that having art in your home is just as important as having breathable air within its walls? Have you considered that your children require bright colors and creative visuals to inspire and encourage innovative thinking (especially now that they are stuck at home with you most days)? Could you allow yourself to be vulnerable and understand why an artless home-office could actually be making it harder for you to do your job?

The home, where you’ve been spending more time than ever before, craves the ability to fill its inhabitants with personality, originality, mood, color, culture, inspiration, empathy, and character. What you hang on your walls, stand on your floors, or loop thru your exposed rafters, speaks volumes about you. Loud volumes.

So, now that the base is bumping, allow me to introduce you to a fellow Armonkian, Evan Lorberbaum. Evan is a visual artist who creates under the moniker ELO, which is short for his movement “Encourage Life Originality”. ELO aims to inspire others to reach their full potential in life through embracing their own individuality. ELO’s artistic style and vision is influenced by graffiti, abstract expressionism and his own relationship with time, personal growth and pop culture. Armonk is art savvy–thanks to the Armonk Outdoor Art Show–a great place for him to call home and office.

Evan has an interesting story to tell of how his journey all began. He also gives you this feeling that things can take off really fast, really quickly. He is a natural artist. I believe this is why his art speaks; even when left wordless.

“if art could talk”

With the new(ish) demand for a home office and some space for your kids to be schooled at, Evan has started working directly with decorators, realtors, and homeowners. He is bringing air to suffocated places, lifting walls beyond their 2D-selves. Suddenly you find your brain functioning differently, better, and you hear your kids talking to each other with vigor about the difference between teal and turquoise.

If art could talk, I think it would ask, “why am I here?” Maybe, “why the heck am I hanging on YOUR wall?”

Meeting an artist and pursuing a unique, personable buying experience affords you the opportunity to have these answers. It allows you to tell your friends and family why the piece exists when they come over for dinner and ask you about it (once you can have company again). It comes with a story. Your story. No one else could tell that same story because it’s your art that you bought and no one else was there. And then the art hangs and tells its’ own story. Even as you sleep. No dialogue is needed.

Throughout our interview, I made a few internal chuckles (maybe some slipped out) when I realized we had some similar thoughts about art and life and knowing that his mother and I both attended the same college (Bear down!). But there was one thing that really stuck out to me. Evan muttered something that made me feel ok about something I never really thought was ok. As so it goes “never be afraid to move art around your house.”

Folks, the purple flower doesn’t HAVE to stay on THAT white wall and the whimsical sculpture doesn’t HAVE to be stuck in a corner of the laundry room. Breathe in. Breathe out.

“something meaningful”

I encourage you to reach out to Evan for whatever reason you feel so inclined. Don’t overthink it or second-guess yourself. If you find yourself envious, go get inspired and pick up a can of spray paint on your way home. If you want to commission Evan to paint meaning ON something meaningful or help you upcycle and bring life back to your grandma’s old vanity, he is up for the opportunity and purpose. Whether you want someone to paint your silhouette on a surfboard, or design custom sneakers, or you just want to visit his studio, he will welcome you and your spirit. You will leave feeling refreshed, enlightened, and surprisingly, listened to. Perhaps he’ll even loan you a collector’s piece to try out in your space.

You need art to survive. Your children need art to thrive. The world needs art to breathe. And you can’t have a heart if you don’t have any art.

Evan’s journey includes travel, graffiti, musical inspirations, and collecting his own sort of oddities and collectibles. His art is displayed in libraries, office buildings, hotels, commercial spaces, residences, and outdoor areas all throughout the tri-state and his residential collectors are country-wide. Evan also hosts other artists, collectors, designers, and realtors, at his home studio.

Some interesting nuggets about Evan:

• One of his childhood camp counselors owns numerous pieces of his art (and so do a handful of other buyers).

• He is a graduate of the NYU Gallatin School of Individualized Study where he focused on the Business of Art & Entrepreneurship, and was recognized as an Honor Scholar.

• This is his 4th year participating in the Armonk Outdoor Art Show.

• ELO, in collaboration with Garrixon Studio, created a 1/1 New York City inspired Nike SB Dunk that incorporates his original artwork, as well custom printed leather that pays homage to the city, named “What the NYC”.

• Throughout the pandemic, Evan donated proceeds from his paintings to Northern Westchester Hospital in Mount Kisco.

To learn more about Evan’s work or to inquire about a private tour, visit www.elovisualart.com

PHOTO By Donna Mueller

Catching up with the Very Decent Michael Schiliro

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After nearly 20 takes, Michael, with the help of his daughter, compiled their first “watchable” video. His days during quarantine, just like the rest of ours, had gone a bit sideways. Mike played barista in the morning and his wife wore the chef hat come dinnertime. Something he admits he always wanted to do more of, COVID-19 finally afforded him the time he wanted to enjoy dinner at home with his family almost every night. Supervisor Schiliro also took this time to address his love for big, gooey, soft, homemade pretzels which took a hit when he became gluten-free. Not really known to be a baker, he wept. I’m kidding. COVID also afforded Michael the time to find some great recipes. In addition to the pretzels, he claims his gluten-free bread and chocolate chip cookies are also not to be messed with. Wow. Ok, I’m hungry!

As the Senior Vice President at PCSB Bank in Yorktown, Michael would tell you that his days were quite different both as a banker and Town Supervisor… conferences got cancelled, breakfast and dinner meetings were long-past rescheduling, golf outings were caput, and cocktail parties were no-more. Bank time was spent handling loan deferrals and PPP loans vs. new loan referrals and Town time was spent assessing and adapting by the hour vs. using year-old best practices.

It was mid-April, and Michael and his dog were out collecting litter left behind by a few bad apples and COVID-19. Keeping our 232-year-old town tidy is something he takes extremely seriously. Litter leads to more litter (broken windows do the same).

Schiliro was the only car headed north on the Taconic that day. Headed to work, busier than ever between his job as a banker and an elected official, when all of a sudden an eerie feeling set in. A pit in his stomach. He was never the only car on the road; not THAT road. Quick to find a smile, he reminded himself of the lady who greeted him at DeCicco & Sons the night before. She was proud to offer a smile that glowed through her mask, add him to the in-store headcount, offer gloves and a mask, and without saying anything, offered the comfort and reassurance he needed to feel safe shopping there. He smiled and felt eager to get off the Taconic and back into DeCicco & Sons.

Listen, Michael knows the school systems, the restaurant scene, open spaces, and claiming to be the pizza capital of Westchester is all incredibly appealing to a potential homeowner, but none of these matter if you don’t have soul. We. Have. Soul.

The proof is in the pudding…

A doctor Michael never met reached out to make an appeal to him during the early onset of the pandemic. Her medical facilities were already experiencing a shortage of masks and she needed his help blasting a call-to-action to the community. Done. Email sent. Well, the plastic bins Michael left on his lawn to collect the masks kept proving to be too small. As the days past the bins continued to overflow with donated masks; first medical ones, and then cloth. And WHOLLY CLOTH. LEARN THIS: our town is full of agile and scrappy seamsters and seamstresses. Photos of families in town with their sewing machines started popping up on social media outlets (and Michael’s inbox) and materials and ideas were flowing through town about how to even make one of these things. But not a soul was deterred… okay, maybe ONE person got fed up with the bobbin and threw in the towel, but Michael wasn’t kidding when he said THOUSANDS of homemade cloth masks were dropped off at his home to be donated. These savvy Mask-Makers were incredibly inspiring.

Got Soul?

As they reduced staff based on local orders, the excellent leadership of Town Administrator Kevin Hay and Confidential Secretary Mindy Berard stood strong with all of our employees and continued to service our community in the way it deserves. Thankful to the police, fire departments, frontline medical staff, clerks, supermarkets, deli-workers, sanitation contractors, and everyone who put themselves out there when other people were not even allowed to go to work, Michael will be forever grateful for your courage and bravery.

BE DECENT. My takeaway from our interview with Michael is that all he wants is everyone to be decent to each other and our environment. Small ask. Big task. But we can do it. Full speed ahead.

And some more pudding for you…