The Inside Press

Magazines serving the communities of Northern Westchester

survivors

Holocaust Survivors Join HHREC Speakers Bureau

by

The Holocaust & Human Rights Education Center (HHREC) of White Plains, NY has announced three Holocaust Survivors have joined their Speakers Bureau.

Dr. Victor Borden (lower right above) is the son of Holocaust survivors Rywen (Roman) and Mina Bornsztajin (Bronstein), who were born and raised in Lodz, Poland from prosperous families. Victor tells the chilling story of his parents’ journey that started in Poland, as they survived imprisonment in the Soviet Union and eventually immigrated to America, where their son enlisted in the U.S. Air Force and served as a physician.

Ernest “Ernie” Brod (upper left) is a Holocaust Survivor who was born in Vienna, Austria in 1938. As a young boy he had to confront the grim realities of his father being among the first Jews killed in the early days of the Holocaust and seeing his brother sent off on a Kindertransport to England. A series of near miracles saved him and his mother from serving time in a concentration camp, and they made their way to Lisbon, Portugal before they finally immigrated to America in 1941. Ernie tells the story of how he and his family struggled to survive and eventually resettle in Brighton Beach, Brooklyn where he met his brother for the first time. A lawyer by training, he has spent the past 40 years as a corporate investigator and has been widely recognized as a leading expert in the field.

Charles Srebnik (upper right) is a Holocaust Survivor who was born in Brussels, Belgium in 1934 to Maria and Leon Srebnik. On May 10, 1940 German forces invaded Belgium, and by October the occupying military government began instituting anti-Jewish measures. His family went into hiding to escape the German onslaught by living at a cottage overlooking a lake near Genval.

Charles shares his story of being saved by a Catholic priest by hiding in orphanages to survive and eventually immigrating with his mother to America.

“We are very pleased to have such distinguished Holocaust Survivors who are witnesses to history join our Speakers Bureau and share their experiences with area high school and college students, and people who gather in our local communities.” said Millie Jasper, Executive Director, HHREC. “here stories will endure as they are of historical significance, and we need to hear them today more than ever.“

For more information about the HHREC Speakers Bureau, and to schedule an appearance at area schools, synagogues, churches and civic centers visit HHRECNY.org  

About The Holocaust & Human Rights Education Center

The Holocaust & Human Rights Education Center (HHREC) is a 501(c)(3) nonprofit organization based in White Plains New York that serves schools, synagogues, colleges, churches and civic centers in Westchester and the greater Hudson Valley area. The HHREC Mission is to enhance the teaching and learning of the lessons of the Holocaust and the right of all people to be treated with dignity and respect. HHREC works with teachers and students to help schools fulfill the New York State mandate that the Holocaust and other human rights abuses be included in their curriculum. Since 1994, the HHREC has brought the lessons of the Holocaust, genocide and human rights violations to more than 3,000 teachers, and through them to thousands of students. For more information visit www.hhrecny.org call 914.696.0738 email info@hhrecny.org

 

Holocaust & Human Rights Education Center Presents: Memory Keepers Story Hour

by

March and April Dates for the Holocaust and Human Rights Education Center (HHREC) Spring 2021 Memory Keepers Story Hour Featuring GenerationsForward Speakers

These events are offered on a virtual online platform, and feature HHREC Holocaust Survivors, Liberators, and GenerationsForward speakers – a second and third generation group that includes children and grandchildren of Holocaust survivors.

The event series started in January with Hannah Deutch, a Holocaust Survivor from the HHREC  Speakers Bureau, as she shared intimate details about her extraordinary experience as witness to Kristallnacht, her transport on the Kindertransport, internment on the Isle of Man, and her career as a nurse.

The HHREC, based in White Plains, NY, launched the Memory Keepers Story Hour series in 2020 in support of their mission – to teach the lessons of the Holocaust, to promote the right of all people to be treated with dignity and respect, and to encourage speaking up and acting against all forms of hate, bigotry, and prejudice. The HHREC has been inviting guests to attend these events to hear members of their Speakers Bureau share their family’s uniquely powerful Holocaust experiences and present their testimonies to their origins. The HHREC Memory Keepers Speakers Bureau includes 26 Holocaust Survivors, 3 Honorary Holocaust Liberator Speakers, and 36 GenerationsForward Speakers who tell their stories from a “next generation” perspective, adding new meaning to the survivors’ powerful stories.

“These stories provide a unique opportunity to hear from a very special group of Survivors and next generation family members into the consequences of human hate, and help people reflect, as they realize that choices matter, that one person can make a difference” said HHREC Executive Director Millie Jasper. She added “We are eternally grateful for the contributions from these courageous men and women who share their stories of survival and personal experiences from the Holocaust. Sadly, the number of our Survivors is dwindling, and we are taking great care to recognize what they mean to all of us and preserve their memories and the impact they have had – and will continue to have – for future generations.”

The HHREC Spring 2021 Memory Keepers Story Hour speaker series began featuring GenerationsForward speaker  Debby Ziering on March 11. 

The remaining schedule this spring:

March 18 – Barbara Lewis Kaplan, GenerationsForward

April 15 – Kathy Grosz-Zaltas, GenerationsForward

April 22 – Wendy Sandler, GenerationsForward

April 29 – Michelle Gewanter, GenerationsForward

All virtual events begin at 7 p.m. To register for these events, email Millie Jasper mjasper@hhrecny.org for Zoom log-in information or call  the HHREC at 914.696.0738.

About The Holocaust & Human Rights Education Center:

The Holocaust & Human Rights Education Center is a not-for-profit organization based in White Plains New York that serves Westchester, Fairfield and neighboring counties. Their Mission is to enhance the teaching and learning of the lessons of the Holocaust and the right of all people to be treated with dignity and respect. We encourage students to speak up and act against all forms of bigotry and prejudice. Their work with students and teachers helps schools fulfill the New York State mandate that the Holocaust and other human rights abuses be included in their curriculum. Since 1994, they have brought the lessons of the Holocaust, genocide and human rights crimes to more than 1750 teachers, and through them to thousands of middle and high school students. Through their volunteer Educators Program Committee, the Holocaust & Human Rights Education Center gives teachers the unique opportunity to develop programs for themselves and others. These programs not only enrich teachers’ knowledge about the Holocaust and related issues, but they   also provide the lens through which to view all other human rights violations. For more information call 914.696.0738 email info@hhrecny.org 

 

 

 

Bearing Witness at the 75th Anniversary of the Liberation of Auschwitz

by

Train tracks leading into Auschwitz – prisoners were transported in cattle cars

Elie Wiesel stated “To hear a witness is to be a witness.”  I am a witness. On January 27th 2020, I traveled to Auschwitz for the 75th Anniversary of the liberation of Auschwitz with 105 Auschwitz Survivors from around the world and 50 world leaders to commemorate the victims and honor the Survivors.

The memorial service took place on the grounds of the death camp where

1.1 million, mostly Jews, were murdered. We sat under a large heated tent that straddled the train tracks that had dragged prisoners into Birkenau, often to their death in the gas chambers. As Ronald Lauder, president of the World Jewish Congress, stated “I am here, simply, as a Jew. And, like all Jews everywhere, this place, this terrible place called Auschwitz has sadly become an inseparable part of us. Auschwitz is like a scar from a terrible trauma.  It never goes away and the pain never stops.”

Walking into the camp I quietly reflected on my grandparents stories of survival. I took in the remains of the barracks, including the barrack where my grandfather spent his youth being tortured against his will. The weather was cold but I was well bundled and couldn’t help but think about my grandfather who was forced to spend his time in Auschwitz without a warm jacket or hat or gloves.

I listened to each Survivor as they shared intimate details about their own personal stories, details that humanized the unfathomable atrocities of Auschwitz. Details that I will shout out to the world and share with future generations so they know the Holocaust happened to men and women and children with personalities and stories, like all of us, not to abstract numbers.

The Survivors all related stories about how upon their arrival at Auschwitz over 75 years ago, they were stripped of their dignity, forced to strip down to nothing in front of all, have their heads shaved, their possessions stolen and arms permanently tattooed with a number.  94- year-old Auschwitz Survivor Batsheva Dagan spoke about her arrival and subsequent assignment of being forced to sort belongings of those sent to the gas chambers.  She cried to the crowd,  “Where was everybody? Where was the world who could see that, hear that and yet did nothing to save all those thousands?”

Turning A Blind Eye on the Jewish Refugee Crisis

In his speech Lauder explained “And when European Jews begged the world for a safe harbor, someplace to go, the entire world turned its back on them. Even my own country–the beacon of freedom–turned out its light on the Jewish people when they needed it most. The US organized a conference in Evian, France in July of 1938 to discuss the Jewish refugee crisis. There were a lot of lovely speeches but the US did not let any additional Jewish refugees in and every other country in attendance followed their lead. There were 32 countries and none of them, except for the tiny Dominican Republic wanted any more Jews.  Hitler saw this. Four months later came Kristallnacht. And again, there was no world reaction. Hitler tested the world. And at every step he saw the truth–the world did not care. That’s when he knew he could build this factory of death. Evian led to Auschwitz. Kristallnacht led to Auschwitz.  World anti-Semitism led to Auschwitz.”

Survivor Josef Kreitenberg commented “I don’t know how I survived but I just kept on believing because that’s all you could do.”

Survivors are Dwindling

As the years pass and the eye witnesses who can say “I was in Auschwitz” dwindle in numbers, these Survivors made it their duty to return to ensure the world does not forget! Polish President Andrzej Duda vocalized “We have with us the last living Survivors, the last among those who saw the Holocaust with their own eyes. The magnitude of the crime perpetrated in this place is terrifying, but we must not look away from it and we must never forget it.”

For some of the Survivors it was their first trip back since that day 75 years ago when they were finally free from their terror. However, for most it will be their last. But to all the Survivors who returned the memories of what occurred inside the infamous gate bearing the words “Arbeit Macht Frei” (translation: work sets you free) are no less haunting today. Survivors continue to have nightmares as their memories are still fresh. However, Survivors feel the need to share these painful memories with future generations so the world will never forget, especially today when we witness the ominous growth of anti-Semitic attacks and hatred around the world.

The author with Survivor Angela (Angi) Orosz Richt. Angi was born in Auschwitz on December 21 one month prior to the camp’s liberation.

No Graves to Visit

Some of the Survivors returned to Auschwitz to memorialize their family members murdered there. These Survivors whose family members went up in flames in the gas chambers and crematorium do not have a grave to visit.  To them, Auschwitz is a cemetery. Survivor Tova Friedman said “My going back is my telling them, I remember you.”

Survivor Ben Lesser explained: “People would love to forget the hard truths and that’s why we need to keep coming back here to refresh our memories and keep the world from acquiring amnesia. Unfortunately, we can’t live forever. What happens after we are gone, I don’t know.”

  93-year-old Survivor Marian Turski declared “Auschwitz did not fall from the skies.” He urged the next generation to be vigilant.  “Do not be indifferent when you hear lies, historical lies. Do not be indifferent when you see the past is stretched to fit the current political needs. Do not be indifferent when any minority is discriminated against.”

Survivor Marian Turski

The 11th Commandment

He explained that the 11th commandment should be “Thou shall not be indifferent.”  He warned that if you “don’t heed the 11th commandment you cannot be surprised when you see (another) Auschwitz fall from the sky.” He explained that if people are indifferent when incremental steps of discrimination are implemented, then another Holocaust could happen. Turksi reminded the room that what allowed the Holocaust to happen was not just the evil of the Nazi’s but also the indifference of the world.

Lauder emphasized “We will never eradicate Anti-Semitism. It’s a deadly virus that has been with us for over 2,000 years. But we cannot look the other way and pretend it isn’t happening. That’s what people did throughout the 1930’s and that is what led to Auschwitz.”

The Nazis tried to dehumanize and obliterate all Jews of Europe. But the 75th Commemoration attended by over 200 survivors proved that Nazi’s did not win. These Survivors signify that the Jewish people won. They survived and were resilient. “There is one more part of the Auschwitz story that no one ever talks about.  When the Survivors were liberated from this Nazi nightmare, they never sought revenge.  They lost their mothers and fathers. Sisters and brothers… After everything that happened to them, these Jewish Survivors just walked out of these gates and went on to build new lives, raise new families, work hard and create,” said Lauder.

After the long day of memorializing in Auschwitz, we arrived back at the hotel for a late dinner. By 11 p.m., Auschwitz Survivor David Wisnia asked for a microphone and explained that he wrote a song while in Auschwitz–a parody about life in the death camp. On January 27, 2020, 75 years after the liberation, David Wisnia, a man full of life, sang this song proudly from his wheelchair to a room full of witnesses who will NEVER FORGET.

All the Survivors agree that they do not want their past to be their grandchildren’s future. The Survivors on this journey did not talk about anger or revenge, but rather their love for their new life and family.   I felt embraced by love on the trip by Survivors who ironically were treated with the worst type of hate, and whose lives were torn apart by hate. Through conversations with the Survivors on my journey and with my grandparents throughout my life, I have learned that the Holocaust is not just a story of hate. It is also a story of resilience, humanity, love and kindness. People who are taught to put others before themselves; people who are taught to love, those people do not hate–rather, they choose life.

Toward Remembering and Reflecting: The New Castle Holocaust Memorial

by

Photos in this feature by Samantha Milewicz for the Inside Press

How Two Chappaqua Residents Committed to Holocaust Remembrance & Education Made It Happen

“When you listen to a witness, you become a witness.” –Elie Wiesel, founder of the U.S. Holocaust Memorial Museum

In 2012, Alexandra Rosenberg (Ali) was lucky enough to spend a night listening to Elie Wiesel speak at Barnard College, Columbia University. She remembered him saying two things that forever stuck with her. The first was, “As long as survivors are here, listen to them…”. And the second was, “Indifference is never an option.” She spent the next six years hearing survivors speak as often as she could and felt if survivors had the courage to share their stories it was her duty to be their audience.

Ali began to focus her efforts on making an impact on the community and the schools. She wanted to find a way to increase Holocaust education for the next generation so that they could feel empowered to prevent this from ever happening again.

All of this led to the creation of a committee for the town and an organization for the students: the town renews its awareness and the students can learn. Together, the New Castle Holocaust & Human Rights Committee and the Horace Greeley High School student organization E.N.O.U.G.H.–Educate Now On Understanding Genocide and Hate will provide annual Holocaust and Human Rights programming to our community and our children.

In addition, Ali recommended the creation of a New Castle Holocaust Memorial which would stand in a visible area of our town where residents of all ages can reflect, remember and learn about the important lessons of the Holocaust.

Gaining a Town’s Support

Rosenberg approached Town Supervisor Robert Greenstein in April who threw his support behind her ideas. Aware of her friend Stacey Saiontz’s commitment to Holocaust education and remembrance, Ali approached Stacey to help her realize her vision for the community. Saiontz holds leadership roles at the Auschwitz Jewish Center, the Museum of Jewish Heritage and the Holocaust and Human Rights Education Center. In October, Saiontz was honored with a National Leadership Award by the U.S. Holocaust Memorial Museum, www.ushmm.org, where she is a founding member of the Museum’s “Next Generation” board.

Photo courtesy of Alexandra Rosenberg

After introducing their combined experience and ideas, Rosenberg and Saiontz met with the Town Board and the Recreation and Parks Commission, and the idea for the New Castle Holocaust Memorial was approved.

Greenstein said, “This is one of the most meaningful projects that I’ve worked on over the last six years. It’s crucial that we remember the lessons of history and provide future generations with the tools to combat hate and bigotry.” Subsequently, Greenstein and the Town Board established the New Castle Holocaust & Human Rights Committee appointing Rosenberg and Saiontz as Co-Chairs and calling for applicants to apply for the eight Committee member positions and two student liaison positions for E.N.O.U.G.H..

The Daffodil Project

At Community Day on September 14th the students set up a table and introduced the club to the community. The students explained that the mission of E.N.O.U.G.H. is to empower students to stand up to hate and to develop a community of tolerance through education and the understanding of people’s differences.

The students also sold daffodil bulbs which were planted at the Memorial in October. The sale of the daffodil bulbs was part of a larger initiative–The Worldwide Daffodil Project (daffodilproject.net). The Worldwide Daffodil project’s purpose is to commemorate the lives of the children lost during the Holocaust. The goal is to plant 1.5 million daffodils across the world–one daffodil for every child killed during the Holocaust.

A few weeks before the dedication and opening ceremony, E.N.O.U.G.H student members coordinated a Community Planting Event. Students and residents, together with Saiontz and Rosenberg, planted 750 daffodil bulbs which will blossom in the spring when the community holds an annual event commemorating Yom Hashoah, Holocaust Remembrance Day.

The Dedication and Opening Ceremony

Rosenberg explained that, “The Dedication and Opening Ceremony was purposely planned to coincide with Kristallnacht, “The Night of Broken Glass”, which symbolized the final shattering of the Jewish existence in Europe. And so, on November 6 , in cool temps on the lit green field outside our pretty Gazebo, a full array of dignitaries gathered, each to speak out against antisemitism and hate. They included President Bill Clinton, State Assemblyman David Buchwald, State Senator Peter Harckham, County Executive George Latimer and Town Supervisor Elect Ivy Pool. Former Westchester Legislature chairman Mike Kaplowitz, New Castle town board members Lisa Katz and newly elected board members Jeremy Saland and Jason Lichtenthal also attended.

Greenstein, Rosenberg and Saointz each spoke. I was graciously invited to speak as well on behalf of my father, Jacob Breitstein, who was a Survivor of Auschwitz-Birkenau. As part of the ceremony a bench was dedicated in my Father’s loving memory. Rosenberg and Saiontz said: “It was a way to honor your father who so many have come to know through your affectionate writing about ‘Poppy’ and for all you do for New Castle and Holocaust awareness.”

Holocaust survivor Peter Somogyi offered the keynote address which conveyed the pain and horror he endured as a victim of Dr. Mengele’s cruel experiments. A candle lighting ceremony was led by survivors and also by students of E.N.O.U.G.H.

At the ceremony the Co-Presidents of E.N.O.U.G.H., Sam Rosenberg and Charlie Gordon, unveiled the memorial plaque. The inscription on the plaque says, “In memory of the six million Jews and millions of other victims who were persecuted and murdered simply because of who they were and what they believed. In honor of those who survived the Holocaust, and those who risked and gave their lives to save them. NEVER AGAIN.”

Matty Wasserman, a Junior at Horace Greeley High School and the winner of the Horace Greeley High School Quote Submission Contest, read the original quote that he wrote, now listed below the words NEVER AGAIN on the Memorial plaque. Wasserman’s quote reads: “Although no one can change the hate that occurred, to not acknowledge it and understand it would be forcing it upon our future.”

As part of the ceremony Rabbis, Cantors and Reverend from local synagogues and churches joined together in prayer and song. The materials for the memorial and bench as well as the landscaping were generously donated by Manzer’s Landscape Design & Development based in Peekskill. The memorial plaque was funded by an anonymous Chappaqua family.

“Our Residents are our Town’s Best Assets”

Right here in our town, these two extraordinary women, each with their own respective and immensely impressive histories of philanthropy, advocacy and Holocaust education, have ‘listened’ to and embodied the very spirit of the witnesses of whom Wiesel speaks. Together these women partnered with a mutual mission to honor survivors, and to ultimately fight antisemitism and all hate by keeping the lessons of the Holocaust alive for present and future generations.

In 2017, HBO created an 18-minute documentary, featuring a conversation between Saiontz’s grandfather and sons, specifically to educate students. Saiontz commented that the creation of the Memorial, the Committee and E.N.O.U.G.H. will now serve as a platform to educate the community and future generations about the lessons of the Holocaust and the importance of taking action. “The Holocaust did not start with the gas chambers and killing. It started with indifference to hate. We need to teach people to stand up to hate wherever it may fester.”

All of Rosenberg’s and Saiontz’s initiatives have been aimed at combatting the significant rise in hate that is permeating our world. Rosenberg said, ”The Holocaust is not only a Jewish story it is a HUMAN story and one that began with HATE. Over these last several years hate has crept back into our world’s, our children’s world’s and specifically our children’s schools. Hate crimes in schools have increased by 25% for the 2nd year in a row. Collectively, it is time that we all say E.N.O.U.G.H. of the reactionary response to hate. It is time to be proactive.”

How Organ Donations Save Lives: Local Transplant Survivors & Advocates Educate the Community

by

Amy Silverstein
COURTESY OF UJA WESTCHESTER
When Pleasantville resident Daniel Flood was 68 years old, he went into renal failure. He was sick, depressed, and looked jaundiced. Doctors told Daniel that he had six months to find a donor or he would have to go on dialysis for the rest of his life. At that moment, his three daughters, Jennifer, Cynthia and Heather, and their mother, Roseann made it their mission to do whatever they could to find a kidney donor for Daniel.

Amy Silverstein’s first heart gave out in 1988. She received her first transplant, the heart of a 13-year-old child, after spending two lonely months in the hospital. This heart, which was expected to last 10 years, gave her 25 more years of life.

When her second heart failed, she realistically did not expect to receive a second donor heart.

(L-R) Cynthia, Heather and Jennifer
COURTESY OF FLOOD SISTERS FOUNDATION

A Dire Need for Organ Donations

The American Transplant Foundation, an organization dedicated to helping people to find organ donors and providing emotional and financial support to transplant patients and donors, estimates that over 100,000 people in this country are on a waiting list for an organ transplant. Every 10 minutes another name is added to a transplant list. Both Daniel Flood and Amy Silverstein beat the odds.

When Flood was in his 60’s, he found out that he was born with one kidney. He developed hypertension, which eventually destroyed his one kidney. Neither his three daughters nor his wife were donor matches for him. His daughters decided to take an unorthodox route and posted for a kidney donor on Craigslist. “The Craigslist ad was a shot in the dark!” states his daughter, Jennifer Flood. “We used Craigslist for selling items, finding jobs, for childcare. It was a success for all these things, and we said why not post for a kidney donor in the volunteer section for dad?” The ad sparked the interest of an acquaintance who worked for the tri-state news radio station WCBS 880AM. She interviewed the Flood sisters, enabling a wider audience to hear their story.

Silverstein already outlived doctors’ expectations. After her first transplant, she was able to finish her third year of law school, marry her husband, Scott, raise her son, and live an active, fulfilling life. Yet, life with her donor heart was not carefree. She was often nauseous, had around 15 infections every year, underwent over 70 painful heart biopsies, took thousands of doses of medicines, and suffered from breast cancer caused by the anti-rejection drugs. “I didn’t stop,” says Silverstein. “I went to the gym and stood online at the grocery store, no matter how nauseous I felt that day. I kept going. I always tried to put on a good face.” In 2014, 26 years after she received that first donor heart, her heart failed. Encouraged by her family and friends, she travelled across the country to Cedars-Sinai Hospital in California and put herself back on the donor list.

The American Transplant Foundation estimates that liver and kidney disease kill more than 120,000 people every year. Twenty-six million Americans have kidney disease, and many do not even know it. Every year, there are approximately 6,000 living donations. Living donors can donate kidneys, while hearts are donated by someone who is brain dead but still on life support. A heart donor must be under 65 years old and cannot have a history of heart disease or trauma to the chest. As difficult as it is to receive a kidney, it is significantly harder to find a matching donor heart. To get on the donor list for a heart, candidates must adhere to a strict set of health-related rules.

After the Flood family’s radio interview, thousands of strangers, reached out to them. They were able to start a widespread campaign to find a matching donor for Daniel. They tracked potential donors via an Excel spreadsheet, personally speaking to every potential donor. Jennifer Flood, a nurse, knew that Daniel’s options were limited as he could only receive a kidney from a donor with an O blood type. After their review, the list dwindled down to six potential donors, three of whom were disqualified as a result of other medical issues. According to Jennifer, “The campaign was an emotional rollercoaster.”

Everything was different for Silverstein the second time her heart failed. In a hospital bed across the country, she had little hope that she would survive. Yet she was surrounded by much love and support, which helped her to persevere. Nine of Silverstein’s friends put together a schedule, and they took turns flying from New York to California to stay with Silverstein in her hospital room. Visitors were few and far between when she was 25. At 50, after her second heart failed, her friends did not leave her side. These friendships were “life-saving and illuminating,” according to Silverstein, who said that she realized the value and magnificence of her female friendships and spoke about them at a recent UJA event at Chappaqua’s Temple Beth El.

How the Organ Waitlist Works

According to the American Transplant Foundation, the waitlist for an organ transplant is not simply a numerical line. The waitlist encompasses a gigantic pool of patients, all of whom are characterized by their blood types, health needs, severity of the illness of the candidate, geographic location of the candidate and specific genetic characteristics. If a donor becomes available, matching features are entered into the system and a list of potential candidates, starting locally and possibly spreading nationally is developed.

Daniel Flood was extremely fortunate. An unknown woman from Monterey, California saw his daughters’ Craigslist ad in 2008 and offered to donate a kidney to Daniel. The donor empathized with the family’s situation, as she lost a close mother figure and was particularly close to her father.

In December 2009, Daniel received a new kidney. His family’s unconventional campaign to find a matching kidney donor was a success.

Two months into her stay at Cedars-Sinai Hospital, Silverstein was offered another heart. Once again, she matched with a 13-year-old girl, and this child would give Silverstein the invaluable gift of a longer life. “With this second transplant, I don’t know how long I have,” noted Silverstein, who travels back to California every six months to see her doctors. “But I know that whenever I need to talk to someone, I have nine friends I can call, and I will have an honest, free-flowing conversation. I have an incredible support system.”

Silverstein is particularly lucky. Many people in her situation do not have people on whom they can rely. Autumn Porter, a Senior Program Coordinator at The American Transplant Foundation, believes it is vital to create a network of support for transplant patients. The Foundation has a mentorship program to help both transplant candidates and donors. This program also gives people a platform through which transplant candidates can help find living donors and to get their stories out to a wider audience. These resources are designed to alleviate some of the stress of this process for transplant patients.

Complications from Immunosuppresive Drugs

Since his transplant, Daniel Flood feels significantly better and appreciates that he can enjoy his life and his family. Silverstein has been re-energized by her third heart, running three times a week. However, she knows that with a heart transplant “you are trading one disease for another.” She is grateful for the medical advances over the past 25 years. All transplant patients must take anti-rejection, or immunosuppressive drugs. These drugs block the immune system, helping to protect the new organ and help maximize its functionality. Long-term use of these drugs can lead to complications, including diabetes, high blood pressure and some cancers.

These vital anti-rejection drugs are often unbelievably expensive. Porter notes, “Many people cannot afford these protocols.” The American Transplant Foundation helps transplant patients to access these medicines. The Foundation’s “Patient Assistance Program” also offers financial help for donors, helping them to pay for their expenses.

Educating Others About Organ Donations

After helping their father, the Flood sisters wanted to use their newfound knowledge to help other people find living kidney donors. They started Flood Sisters Kidney Foundation and, thus far, have helped to match 11 other people with living donors. Leveraging social media and various media outlets, they share patients’ stories. “Every story is unique. I believe people are driven to help someone in need because they have seen someone close to them receive a transplant or go through setbacks in their lives, and they want to make a difference,” states Jennifer. The Flood sisters hope to enhance and expand their Foundation, incorporating an educational component and nutritional program. They also recently held a Bon Jovi acoustic concert at Tarrytown Music Hall earlier this month with part of the proceeds benefitting the Foundation.

Silverstein inspired millions with her story. In 2008, Silverstein wrote about her first heart transplant in Sick Girl. In 2017, she authored My Glory Was I Had Such Friends, the story of how the support of her friends was life-changing for her when her second heart failed. JJ Abrams plans to bring her latest story to television. “Appreciate when you feel well,” Silverstein says.

“And remember, even in my position, all good things are possible. Try not to be defined by it. It is very easy to get swallowed up by the illness that you have. I’ve been lucky not to become my illness and that is my hope for others.”