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cancer

“Incredible Progress” Two Words about Pediatric Cancer We Love to Hear

February 2, 2014 by The Inside Press

By Jamie Lober

Maria Fareri Children’s Hospital is a special place that has been treating kids in the area for over 30 years.  “If you look back when our division first started, the outcomes for kids with pediatric cancers in general were not as optimistic as they are today,” said Jessica Hochberg, M.D., assistant professor of pediatrics in the hospital’s pediatric hematology/oncology and stem cell transplant division.

Especially in the last 20 years, there has been incredible progress in the doctors’ ability to treat the kids.  “With newer agents and approaches, we are turning the table to curing the majority of pediatric cancers in a way that is not devastating to the rest of their health and they are growing up to be healthy, happy, productive adults with families and careers,” said Hochberg. Kids tolerate therapies well with few exceptions and get back to school and other activities in time, she added.

slide1“The best example is pediatric leukemia because back in the 1950s and 60s that disease was uniformly fatal and there was not much we could do; now, with newer agents and combinations of medicines today, we are curing over 90 percent and we can do it without radiation or high dose chemotherapy,” said Hochberg.

 Little Heroes

The doctors describe these kids as heroes and are glad to offer them a team of assistants in the fight including nurses, social workers and clinical coordinators. Kids come back doing well after they are done with treatments and are sometimes proclaimed as cured.  It is rewarding for the doctors to watch them grow healthy and transition into adults.  Every child tackles a different quest.

“The most common cancers in pediatrics are the leukemias, in particular acute lymphoblastic leukemia, closely followed by various brain tumors for which there is also a lot of progress made in surgical techniques, radiation techniques and chemotherapy combinations,” said Hochberg.

The statistics may alarm you.  “Childhood cancer occurs regularly, randomly and spares no ethic group, socioeconomic class or geographic region,” said Gillian Kocher, public relations director for Alex’s Lemonade Stand Foundation for Childhood Cancer. Families rely on the politicians to keep research funded and on the scientists to continue the good work they are doing. “Worldwide, an estimated 263,000 new cases of cancer affect children under the age of 20 each year,” said Kocher.

It’s a small number of kids who get cancer compared to adults but pediatric oncology centers have been able to collaborate nationally and internationally to find clinical trials and share information, expertise and treatment strategies. “This way we can identify best combinations of treatments and the treatment becomes uniform throughout the country at the different centers,” said Hochberg. Some kids’ tumors are more resistant than others but there has been a big development of supporting research that looks at the specific biology of tumors and determines what made the tumor cell become a cancer cell. It is used to identify new targets and drugs to use.

There is a lot being investigated such as biological differences that can vary even among the same disease patient to patient. With two patients with the same disease and biology, one may do well and another will not.  “There is still a great deal we have to learn about why that is but I always tell families that there was nothing they did to cause it and there is nothing they can do to prevent it,” said Hochberg.

The most dramatic trend is the number of cancer survivors doctors are seeing as they get better treatments.  “An interesting direction the field is going in is how to deal with the later effects of chemotherapy or radiation treatment in childhood as an adult,” said Hochberg. New treatment options tend to have less toxicity on the healthy tissues in the body.  “Exciting developments that we are actively researching and participating in here are looking at cellular and antibody therapies and manipulating the immune system to better fight off the cancer,” she added.

The community is supportive of patients and has done blood drives and fundraising to help with medical costs. They are also interested in the new findings. “There are a lot of cellular treatments where we can take immune cells from the patient or sometimes from a donor and manipulate those to become cancer-fighting cells and give those back to the patient after we have manipulated them in various ways,” said Hochberg. This has been well-tolerated.

The “Take Home” Message

Doctors want the take home message to be that although they realize childhood cancer is scary, they do plan to cure kids.  “We want to be as open as possible while at the same time always giving them hope and reassurance that we will get them through this,” said Hochberg.

Often the fear of what the treatment will be is usually worse than the treatment itself. When patients have a great response to therapies, doctors see relief and fear subsides.

Doctors highlight that pediatric oncology is such a different field today than it used to be. “The biggest misconception is that obviously this is a devastating disease that you would never want your child to go through but I think people need to know that from the time they were kids compared to now it is so different and really is a field full of hope and good much more than the sadness that comes along with it,” said Hochberg.  Families are encouraged to get involved and spread the word about research efforts.

Jamie Lober, President of Talk Health with Jamie, is a nationally known speaker and writer with a passion for providing information on health topics A-Z. She can be reached at talkhealthwithjamie@gmail.com.

Resources for Families

Maria Fareri Children’s Hospital, 
department of pediatric oncology, westchestermedicalcenter.com/mfch

(914) 493-7997

Alex’s Lemonade Stand Foundation alexslemonadestand.org

Leukemia and Lymphoma Society lls.org

(914) 949-0084

American Cancer Society cancer.org

(914) 949-4800

Filed Under: Cover Stories Tagged With: cancer, kids, Maria Fareri Children’s Hospital, pediatric leukemia

Support “My Hope Chest”at ICD Jewelry on December 6

December 4, 2013 by The Inside Press

Hope-chestBy Virginia Shasha

Last December, my world stopped, with words one hopes never to hear: breast cancer. Through denial, fear, anger, tears, I was determined to survive.

My friends, family, and ICD colleagues supported me throughout my treatments.  I took my life back, and returned to work, coming out on Community Day: I was overwhelmed by the support of my Chappaqua friends.

I found a way to “pay it forward.” There is a small foundation, My Hope Chest, that raises money for reconstructive surgery for uninsured women, most of whom do not enjoy the encouragement I was so fortunate to have. Varda has graciously offered to help aid them through ICD. We will be holding a special event at the store for the benefit of My Hope Chest on Friday, December 6th.

I gratefully wish everyone who expressed their cares a healthy year filled with life’s joys.

For more information, visit www.myhopechest.org

Virginia Shasha is a 
Chappaqua resident and 
director of private sales at ICD Contemporary Jewelry.

Filed Under: In and Around Town Tagged With: cancer, fund raising

The Power of C – More Than A Vitamin at the Center

December 4, 2013 by The Inside Press

By Vicki de Vries

The Cancer Treatment and Wellness Center at Northern Westchester Hospital
The Cancer Treatment and Wellness Center at Northern Westchester Hospital

This year, an estimated one-and-a-half-million Americans will be diagnosed with some type of cancer, according to the American Cancer Society. That dreaded C word strikes fear in the hearts of the most stalwart among us.

But thanks to the Cancer Treatment and Wellness Center (the Center) at Northern Westchester Hospital, fear has been replaced with relief. And in many cases, healing–as thousands have found what one patient calls “a safe haven.”

What kind of care does every patient in the world want? Most likely, these closely-linked C words: competent, coordinated, customized, convenient, and compassionate, all of which spell e-x-c-e-l-l-e-n-c-e.  In the process of touring the Center, speaking with numerous staff members and therapists, along with a few patients, Inside Chappaqua was pleased to discover this word exists nearby.

Skilled Professionals Provide Competent, Customized, Coordinated Care

When it comes to competent care, the Center excels. The therapists and staff are highly trained professionals. Asked how he would describe the team, head oncologist (cancer physician) Dr. Alfred Tinger, who has worked at the Center since it opened in 2005, put it succinctly: “Knowledgeable, personable, dedicated, experienced, eager to serve,” adding that “we certainly strive to make their lives and the lives of their families easier during this time. This is why we exist.”

Any successful enterprise has to maintain careful protocols. Of supreme importance is the accumulation of data about a patient’s cancer profile obtained through either the linear accelerator, which provides radiation treatment to the exact location of the cancer cells, and the gamma knife, which is not a knife at all, but a highly sophisticated, non-invasive device for treating a broad spectrum of brain lesions. Once data has been sent to resident medical physicist, Steve Iorio, he and the staff analyze it to determine the precise dose of radiation needed to treat the cancer and avoid critical organs. Therapists work closely with the technology team to ensure the highest level of quality diagnosis and treatment.

It should be no surprise that after visiting the Center, oncologists from the “sophisticated” hospitals in Manhattan, impressed with equipment and staff, will refer their Westchester patients to the Center for radiation treatments. That endorsement speaks for itself.

A Major Stress Reducer–

Conveniently Located Care

Before the Center opened, cancer patients in Northern Westchester often had to make a long trek to find quality care. Now, with the Center offering the same professional, state-of-the-art care as renowned but more distant hospitals, travel time for these cancer patients has been drastically reduced–and their stress levels as well.

When diagnosed with Cancer, Beth Besen chose to work with a Manhattan-based oncologist who specialized in her rare form of Non-Hodgkin’s lymphoma. Finding travel to the city twice every three weeks for chemotherapy hard enough, she was adamant about finding an alternative place for daily radiation.

Besen was relieved and grateful the Center was able to meet and administer the same quality protocol she’d receive in the city. Soothing surroundings and caring staff made treatment more tolerable, while staying local meant less stress and more time to recover and go about her daily routine.

Setting a Standard for Compassionate Patient Care

Certainly, many fine hospitals provide competent, coordinated, customized, conveniently located cancer care to their patients, but some would argue that compassion is often lacking in healthcare.

The Center proves otherwise. What sets it apart is not only its “high tech” level of competence, but also its “high touch” level of compassion. The staff and the therapists express a strong sense of empathy with their patients. “We’re all family here” is the oft-repeated mantra, but it sounds and seems genuine.

Start with the Twigs Healing Garden. Unlike typically sterile-looking hospital waiting rooms, Twigs reminds one of a spa. Patients await their radiation treatments dressed in waffle-weave robes while sitting on comfortable furniture, surrounded by plants under an atrium-like ceiling that allows light to enter the spacious room. “The setting was designed to be bright and airy to help patients feel more relaxed and confident,” said Adele Gargano, director of the Center. A nearby table holds the Healing Crane Tree, painted tree branches from which hang colorful origami cranes. Hope Soars Over All cards in a glass bowl offer inspirational words, and patients are encouraged to share theirs on blank cards. Bowls of fresh fruit and cookies add a homey touch. Once a week, a pianist plays soothing sounds to enhance the already relaxing atmosphere.

Integrative medicine “modalities” are also incorporated into the Center’s cancer treatment protocol. Anne E. West, the integrative medicine nurse, offers massage, acupuncture, and reflexology to patients who want them. Coordinating medical and integrative treatments in one place saves patients precious time and energy.

Details count, and the Center has worked hard to consider as many as possible. One patient shared with Besen, “when you’re lying scared on the table, look up; notice they even took the time to put tropical flowers above you so you’d have something beautiful to look at.” Details like this may be why customer satisfaction ranks high on the Center’s surveys. One can read all the brochures that an enterprise can produce, but take a look at their “Customer Satisfaction Surveys” for a glimpse of the real deal. The high marks do not surprise Director Gargano, who said: “The patients become like a family here. Everyone surrounds them with warm attention and highly professional care.”

Dr. Tinger commented that while the team is gratified by the many wonderful letters, cards and gifts received from patients and their families “after, and often during, their journey with us,” he is also appreciative “when someone has the courage to inform us how we can do things better.” That level of willingness to improve is another hallmark of a successful enterprise and further accounts for the exceptional quality care.

The counterpart to the treatment side at the Cancer Treatment and Wellness Center is the Health and Wellness Program, which, Dr. Tinger said, is part of the “continuum that helps a patient from any state of health or disease to a better state of health and wellness” and seeks to maximize the benefits of the cancer treatment.

A patient practicing yoga in a free Health & Wellness Program fitness class.
A patient practicing yoga in a free Health & Wellness Program fitness class.

Extending the Benefits of State-of-the-Art Cancer Care

Started in 2011 by Marilyn Leroy-Sterling, who is a nurse practitioner and serves as the program coordinator, the Health-and-Wellness Program owes its existence to the generous donation of a community member who wanted to ensure that all cancer patients have access to supportive therapies that have been shown to reduce stress and aid in the healing process. As a result of that gift and ongoing financial support from both Northern Westchester Hospital and other donors, patients have free access to the many services the program offers.

Marilyn Leroy-Sterling also serves as an integrative health coach, partnering with patients to help them deal with their health, nutrition, fitness and family concerns. On any given day, she might refer a patient to the medically monitored gym that the Hospital maintains at Chappaqua Crossing or to the nutritionist, who creates customized menus, or to the social worker or to the chaplain in the Mind For Wellness support team. Recognizing that writing can be a form of therapy, the program also offers an online journal-writing course.

Whether it’s setting goals or reaching them, Leroy-Sterling is available to help patients improve all aspects of their day-to-day life. In her words: “We provide a prescription to wellness.” Then, after patients complete the Health and Wellness Program, she gives them a comprehensive end-of-treatment summary that details their cancer history, diagnosis, treatment and an “evidence-based” follow-up plan of care—a roadmap to help the patient navigate successfully as a survivor.

Word has gotten out, and more and more cancer patients are participating in the Health and Wellness Program, which also receives high marks in the customer satisfaction surveys. This year, 100% of the respondents credited the program for reducing their stress levels. One such patient is Joanna Cirasella, who had aggressive breast cancer 18 months ago and expressed her appreciation this way in a video: “The love and nurturing are far beyond anything I could have imagined. Right now, I’m cancer free, and that’s all that matters. I could not have done this without them….”

What additional plans does the Center have?

Gargano said: her dream is to develop a survivorship program that further extends the benefits of the health and wellness program. Meanwhile, in the near future, a Health and Wellness Resource Center will be set up to give patients access to health journals and computers, along with practitioners who will be on hand to talk with them. That is another exciting development that will further the “continuum of care in a patient-centered, state-of-the-art community facility,” added Gargano.

Competent, Customized, Coordinated Care–big “C” meets its match in the many “C”s at the Center.

Vicki de Vries is a freelance writer/editor and educator living in Westchester “country.”

Excerpts from the many thank-you notes pinned to the Center’s bulletin board:
Thank you for giving me the strength, love, compassion to deal…One of your staff brought me to the Health and Wellness Program Coordinator.That was when the healing–beyond physical  recovery–began for me as a whole person. I was gradually guided…to different people and services…. They helped me in ways I could never have imagined and made all the difference in the world….

Filed Under: Cover Stories Tagged With: cancer, compassion, patient care

Cheers to Good Health!

December 4, 2013 by The Inside Press

012-(2)By Beth Besen

When Inside Chappaqua’s esteemed publisher/editor Grace Bennett advertised for a Guest Editor, I jumped at the opportunity! Not because I love the magazine (though I do!) or because I love writing (though I do that too!), but because I COULD! Jump, that is.

A year ago, such was not the case. Based on the results of an otherwise routine mammogram, I was diagnosed with a rare form of Non Hodgkin’s Lymphoma. Cancer, the Big C. I underwent intensive chemotherapy followed by radiation. The future looked uncertain, and it was all I could do to get through each round, make the best and most of each day. Jumping for anything was out of the question.

Happily, things turned out very well for me. Love, support and care came from near and far as family and friends joined and kept company on my journey; I am eternally grateful to every single one of them. Likewise, I am grateful to the doctors, nurses, therapists and technicians who, quite frankly, saved my life; it’s worth noting how very lucky I was–we are–to live as we do here in Westchester, so close to many of the world’s finest medical centers and communities.

I hope you’ll never need the Cancer and Wellness Center at Northern Westchester Hospital. But, if you do, you’ll find comfort, as well as great care, there; take a tour through this issue with Vicki de Vries.

Do you worry about heart disease? Suffer from headaches? Get S.A.D. at this time of year? Flip forward through the magazine as we share info that may help you or someone you love.

On the lighter side of health, there’s always the hope that a much needed break from routine restores us to our best selves. Let Kate Stone Lombardi inspire you to volunteer, follow Heather Skolnick’s lead and plan a family vacation.

You’ll also find smart insider tips of all kinds (visual “soundbites” if you will) throughout the magazine; just look for our Rx and pushpin note to advise, inspire and help you help yourself!

All those exclamation points in my lead paragraph? Not poor editing, deliberate editorial choices; they represent excitement and happiness, grateful appreciation, humility and even honor. While Descartes gave us I think, therefore I am, I suggest I exclaim because I can! Like many survivors before me, I’ve learned that life is for living. Exclamation point!

As I approach the one-year anniversary of my official remission date, I simply can’t imagine better payment forward than jumping into this issue 
of Inside Chappaqua!

Be well, and enjoy!

Credits: Beth’s hair styled by Aura Salon owner Leticia utilizing 
AVEDA products’ “pure flower and plant essences’’;  aurasalonchappaqua.com. Beth’s makeup provided by Kathryn (formerly Kathryn Ellen Makeup Studio); kathrynwbg@aol.com including “botanically based, vegan and toxin-free” Arbonne makeup; sharonh.myarbonne.com.

 

rx-noteBarbara Daniel, Local Dog Walker: Dog hikes can be enjoyable in every season when you’re prepared. My favorite winter hiking tool is Yak-Traks. These ‘snow tires’ or ‘chains’ for shoes make it possible to navigate over, or through, snow or icy surfaces. Many local stores sell them or similar brands.

—

rx-noteBarrie Wolfe, MS RD: Snacking is actually GOOD for you! But there’s an art to it. Instead of grazing on high-calorie junk, my clients eat a “calculated snack”–ideally something with protein and fiber to provide fullness and energy. Indulge in holiday goodies occasionally, but eat a “calculated snack” often. BarrieWolfeNutrition.com

Filed Under: From the Editor Tagged With: cancer, headaches, heart disease, Non Hodgkin’s Lymphoma, SAD, writing

New Summer Day Camp for Children with Cancer

May 28, 2013 by The Inside Press

sunrise camp special needsThis summer, children with cancer and their siblings will have the opportunity to attend the new Sunrise Day Camp at Pearl River, free of charge. This camp was first launched in Long Island, and is now expanding to Pearl River, NY, to serve children from Westchester and other northern suburbs, as well as the northern tip of New York.

Sunrise Day Camp at Pearl River will be open on a non-sectarian basis to all children ages 3 1/2 to 16 years who are coping with any type of cancer at any stage, provided their doctors clear them to participate. Siblings are also welcome to attend. In addition to specially trained counselors, specialists, and assistants, the camp will be staffed by on-site pediatric oncology nurses and supported by volunteer pediatric oncology doctors from area hospitals. Affiliations are in place with some of the most renowned hospitals and medical centers in the service area in the field of pediatric oncology, including Maria Fareri Children’s Hospital, The Children’s Hospital at Montefiore, Memorial Sloan-Kettering Cancer Center, and St. Barnabas Medical Center.

“Children with cancer are often isolated from the normal activities of childhood. Rarely do they have a chance to see beyond the closed worlds of home, hospital, and doctors’ offices,” said Ellie Aronowitz, Executive Director of the Rosenthal JCC, which is partnering with the Friedberg JCC to launch the camp. “Sunrise Day Camp opens the door to a new world by making it possible for campers to enjoy a summer filled with exciting activities daily, enduring friendships and joyful experiences, while paying careful attention to their special medical and emotional needs.”

There will be a SunriseWALKS family friendly walk-a-thon taking place on June 9 to help the sun rise for children with cancer. Anyone interested in participating in the walk or supporting Sunrise Day Camp at Pearl River can visit www.rosenthaljcc/sunrise or call (914) 741-0333, x23.

Filed Under: Special Needs Tagged With: camp, cancer, childhood, Special Needs

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