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migraines

Suffer from Migraines? Patient Advocate Lisa Jacobson & her Site Offer Hope & Resources

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Lisa Jacobson, Patient Advocate

Chappaqua resident Lisa Jacobson knows migraines. As a chronic sufferer for the past 30 years, she has endured more than 9,000 migraines, tried more than 120 treatments and seen countless doctors. But she is also an entrepreneur who decided years ago that she wanted to use her business skills to help solve a formidable health issue that is often stigmatized.

“I wanted to help people somehow, and I realized the one thing that I was really expert at was migraines,” she said. And so began The Daily Migraine, a website (www.thedailymigraine.com) and community forum dedicated to helping other migraine sufferers. Founded in 2014, The Daily Migraine now has more than half a million followers on its website, Facebook and Instagram pages.

Jacobson was not new to entrepreneurship. In 1983, when she was 24, she founded Inspirica, a test preparation and academic tutoring company that now has more than 100 employees worldwide. She used the skills she honed there to build The Daily Migraine. She now devotes 40 hours a week to researching, creating content and monitoring the site and another 40 hours a week at Inspirica.

Creating Community for Migraineurs

The Daily Migraine is chock-full of information and tools for migraineurs (people who suffer from migraines) to use to help navigate their disease. Visitors to the site can download forms to help track their migraines, speak to their doctors, and write down any treatment ideas they think of. But most importantly, it offers a community that migraine sufferers can connect with.

“People who suffer from migraines don’t feel alone anymore,” she said. “When I first started getting daily migraines after neck surgery, I only found one other person in Chappaqua who also suffered from them.” Since this was before the onset of social media, it was very difficult to find a support system. Now, the website brings migraineurs together from all corners of the world, including Iraq, Nepal and of course the United States. This sense of community is a comfort to many people.”

A Stigmatized Illness

Additionally, there is often a stigma associated with migraines, as many people think that having migraines is just like having a bad headache. But according to Jacobson, migraines are actually one of the most debilitating diseases in the world.

“I’ve heard from a lot of people that their bosses or spouses think they are just shirking their responsibilities when they have migraines,” she said. But migraine sufferers experience much more than head pain. Extreme sensitivity to light and sound, throbbing headaches and nausea are also common symptoms. Others experience stroke-like symptoms and are not able to function for days.

Providing a Patient Perspective

Since founding the site, Jacobson has become the top migraine patient advocate in the world. She has spoken at conferences internationally, including the American Migraine Foundation and the International Headache Symposium, providing doctors with a much-needed patient’s perspective.

“Some of these organizations have been around a long time but never had patients involved before,” she said. “I recognized a need for more information for the migraine community,” which the website provides.

There is no cure for migraines, and figuring out what treatment works best can often take years. Most migraine sufferers try different preventive medicines for three months at a time. But there is not one migraine medication that works for everyone. In fact, according to Jacobson, most medications are ‘borrowed’ from other diseases. For instance, many people found that Botox relieved their migraine symptoms, but Botox was not created for this specific use. It is also an undertreated illness; there is only one accredited migraine specialist for every 40,000 migraine sufferers.

Raising Funds for Migraine Research

Jacobson’s goal now is to raise money and awareness for migraine research. She has partnered with Chappaqua resident Scott Boilen, President of Allstar Products Group, to create the Migraine Hat. The hat, which costs $29 and can be ordered directly from the site, contains an ice pack to help soothe the pain. All of Jacobson’s profits from the hat will fund migraine research.

“People have said that the Migraine Hat is revolutionary,” said Jacobson. Since cold soothes the pain, “if you have the hat on, you can function. It takes a migraine that has a pain scale of 8 down to a 6, which can be the difference between lying in bed all day or putting your kids on the bus.”

Luckily for Jacobson, she has finally found a treatment plan that works for her. “I started The Daily Migraine when my migraines were at their worst,” she said. But after trying many different combinations of traditional medicine, stress-release tactics, and lifestyle changes, her migraines started to dissipate. Being pain-free has enabled her to focus on the site and help others.

“It’s like I have my life back again,” she said. Her success with alleviating migraine symptoms after so many years is also inspiring to The Daily Migraine’s many followers. As she said, “Now, I can also offer hope.”

What a Headache: Beyond a Winter Cold and the Flu

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by Ronni Diamondstein 

headache‘Tis the season for colds and flu…and the relentless headache. We all know that prevention is the best medicine: wash your hands, cough into your elbow, get a flu shot, exercise, eat properly and get lots of rest. And we all know the OTC pain-reliever and plenty-of-fluids drill when prevention doesn’t quite do the job.

Headaches frequently accompany upper respiratory infections. There are different headache kinds: migraine, tension and cluster. Millions of Americans suffer from these chronic, primary headaches. “Migraine and tension headaches are much more common than cluster headaches,” says Leslie Goldfein Saland, M.D., a neurologist at Mount Kisco Medical Group. Migraines begin as a dull ache and develop into throbbing pain. They can be preceded by an aura, often visual with flashing lights or wavy lines across one side of the visual field. “Not all migraines are severe,” says Dr. Saland, “but most severe and disabling headaches are due to migraines.”  When they occur more than 15 times a month they are considered chronic.

“Tension headaches are less disabling than migraines,” says Dr. Saland.  “They are usually described as pressure-like pain in the face, neck and scalp which waxes and wanes.” These headaches typically last four to six hours. Cluster headaches are intense headaches that come in “clusters” as the name implies. “Often these headaches occur at the same time of day, or every other day, for weeks, until the cluster ends,” says Dr. Saland.

There are a variety of ways to treat and manage these debilitating headaches including alternative as well as conventional medicine. “The best way to treat headaches is to prevent them in the first place, so when possible, triggers should be avoided and adequate sleep and a low stress lifestyle should be achieved,” advises Dr. Saland. She recommends keeping a headache diary, and notes there are several smartphone apps available to help with tracking and triggers. Triggers include a variety of foods, stress and environmental factors such as weather events like storms, sun glare and changes of season. Saland says the most frequent “food” she hears people describe as a trigger is alcohol. But she adds that too much caffeine and chocolate are also common. Other triggers are MSG, artificial sweeteners, certain cheeses, nitrates and nuts. Besides avoiding triggers, Saland adds that “stress relieving techniques, like biofeedback, yoga and massage can also help prevent headaches.”

“Unfortunately, in the real world this (trigger avoidance) is often not possible so we must be prepared with abortive and preventive medications,” continues Saland. Over-the-counter medications may be adequate, but sometimes prescription medications are necessary. “Migraine medications are most effective when taken as soon as possible after the onset of the headache. Keeping migraine medication nearby at all times can be important in the success of treatment.”  Botox, as a treatment for migraine, has recently been approved by the FDA and, Saland notes, in concert with other medication, it can be quite effective.

Medications are not the only helpful headache treatment. Research studies at Duke University Medical Center have shown that acupuncture can be a most effective treatment of chronic headaches.  “People who suffer from tension headaches can benefit tremendously from acupuncture, “says Gary Sapolin, L.Ac., a licensed acupuncturist at Satori Wellness Center in Katonah. “Tension headaches can be caused by tightening muscles and acupuncture is wonderful for relaxing tightening muscles.” Acupuncture involves penetrating the skin with thin, metallic needles at specific points and “works by retraining the body’s vascular and nervous system to respond to stressful stimulators.” Developed over 2,000 years ago, it remains one of the main medical treatments in traditional Chinese medicine to this day.

Sapolin further mentions that acupressure, another traditional Chinese therapy that is a form of massage, can also help people suffering from chronic headaches. Acupressure practitioners apply pressure to acupoints on the body’s meridians. Acupuncture and acupressure are often used together for maximum relief. “What we look to do is lessen the frequency and intensity of headaches,” says Sapolin. “Everyone benefits to some degree, it is just a question of the intensity.” Sapolin says that even people with basic stress can benefit from acupuncture. “It gets to the root of a lot of health problems. It’s a medical treatment, but it is also a spa treatment.”

Both traditional and nontraditional approaches can help chronic headache sufferers. It’s just a matter of finding what works for you.

Ronni Diamondstein, owner of Maggie Mae Pup Reporter™ is a Chappaqua based freelance writer, PR consultant, award-winning photographer and former School Library Media Specialist and teacher who has worked in the United States and abroad.

A Recipe to Ease

Winter Colds

In 1997, I read an article by Suzanne Hamlin in The New York Times with a remedy to ease winter cold and flu symptoms. This was well before Airborne® came on the scene. As a teacher, I was exposed to everything and Hot Ginger Lemonade seemed like something worth trying. For the following 15 years, I made this recipe daily and was able to ward off a bad cold. If I did get a little something, it never lasted very long. You need to 
like ginger and spicy things.

Hot Ginger Lemonade

Grate unpeeled ginger using the large holes of four-sided grater. 
Put two tables of the shards 
into a teapot. Pour in two 
cups of boiling water. Cover 
and let steep for five or ten 
minutes. Strain out the ginger, add a tablespoon of honey, two tablespoons of freshly squeezed lemon juice and a pinch of cayenne pepper. Stir and drink. Stay well!